Motor Neurone Disease (MND) is a progressive neurological disease in which the nerve cells - neurones - controlling the muscles that enable us to move around, speak, breathe and swallow, fail to work normally. With no nerves to activate them, muscles gradually weaken and waste. The patterns of weakness vary from person to person.
MND affects the ability to move
MND is fatal with no effective treatments or cures. The average life expectancy is 2-5 years after diagnosis. At any one time, there are approximately 2100 people living with MND in Australia.
Receiving the best possible care and support from the relevant State Associations around Australia is critical for those living with MND to live as well as possible for as long as possible. State Associations provide a range of services that allow people with MND and their families to stay safe, independent, engaged with their community, informed and connected to as many allied health services as required.
All State Associations rely heavily on the generosity of donors and fundraisers to keep their services operating. AM4MND is the first time a national fundraising event has taken place between all MND State Associations. All funds raised from this campaign will help the 2100 people living with MND in Australia continue receiving the best possible care and support from their local State Association.
On top of all the care and support delivered by State Associations, funding for advocacy, information and research is also immensely important. The State MND Associations, together with MND Australia and MND Research Australia, form the only national network focussed on improving the lives of all Australians living with MND. For over 35 years this national network has helped increase understanding of the disease, advocated for improvements in care and funded world-class research in the search to find treatments, better models of care, and ultimately a cure.