Motor Neurone Disease (MND) is a progressive neurological disease in which the nerve cells - neurones - controlling the muscles that enable us to move around, speak, breathe and swallow, fail to work normally. With no nerves to activate them, muscles gradually weaken and waste. The patterns of weakness vary from person to person.
MND affects the ability to move
MND is terminal with no effective treatments or cures. The average life expectancy is 2-5 years after diagnosis. At any one time, there are approximately 2100 people living with MND in Australia.
Receiving the best possible care and support from the relevant State organisations around Australia is critical for those living with MND to live as well as possible for as long as possible. State MND organisations provide a range of services that allow people with MND and their families to stay safe, independent, engaged with their community, informed and connected to as many allied health services as required.
- Help people with MND live better for longer.
- Achieve a personal best in fundraising.
- Show your support for a loved one impacted by MND.
- Raise awareness of MND and the needs of people living with the disease.
Your support makes a real difference. It can empower someone with MND to remain an active member of their family and community. Funds raised may be used to purchase more assistive technology such as wheelchairs, hoists, ramps or electric beds. Or they may be used to enable someone with MND to communicate via iPads, NeuroNode or eye-gaze devices.
All State MND organisations rely heavily on the generosity of donors and fundraisers to keep their services operating. Only the State MND organisations provide Support Services focussed on ensuring that no person living with MND is living with a high level of unmet needs.
On top of all the care and support delivered by State MND organisations, funding for advocacy, information and research is also immensely important. The State MND organisations, together with MND Australia and MND Research Australia, form the only national network focussed on improving the lives of all Australians living with MND. For over 35 years this national network has helped increase understanding of the disease, advocated for improvements in care and funded world-class research in the search to find treatments, better models of care, and ultimately a cure.